About Me

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Hi all, my name is Daniel, I’ve been fighting a rare form of cancer called Chordoma now for 10 years and it has greatly affected my life in many, many ways. I am now needing 24 hour care and now live in a care support community with that 24 hour support and care that I need. I am a nice guy with a loving and outgoing personality. I have been described by friends and the herald sun as -funny -bright -articulate -would be everyone's favourite nephew! My cancer is a rare tumour at the base of my skull. In 2001 I suffered a stroke when I was 16 that have caused me to be very unbalanced on my feet. I do have a few minor physical problems now also and require 24 hour ventilation to keep breathing; I am using a pacemaker device for my diaphragm (diaphragmatic pacing) during my hours awake and a ventilator when asleep. I am finally out of hospital and managing well with the help I get. I am Italian...yes even with the red hair! I love music and anything to do with it. I love movies to, my family, my friends and my faith in God is very important to me and is what I believe is getting me through this dreadful journey in life.

Wednesday, August 11, 2010

I can hear again!

I can hear! I can hear again! Mum took this photo! Its the morning after surgery all is well, I am texting from my phone again. I am already off the ventilator and on my diaphram pacing, pain levels are good. I still cant talk coz of...well I will leave it at still cant talk for now! Till next time, ciaooooooo!!

1 comment:

  1. Hi, Daniel. So glad to hear that your surgery went well and that your hearing has improved. Will be anxious to follow your blog and hear how you're doing. You're an inspiration to us all.

    Judy/PA
    Chordoma Support Group

    ReplyDelete