About Me

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Hi all, my name is Daniel, I’ve been fighting a rare form of cancer called Chordoma now for 10 years and it has greatly affected my life in many, many ways. I am now needing 24 hour care and now live in a care support community with that 24 hour support and care that I need. I am a nice guy with a loving and outgoing personality. I have been described by friends and the herald sun as -funny -bright -articulate -would be everyone's favourite nephew! My cancer is a rare tumour at the base of my skull. In 2001 I suffered a stroke when I was 16 that have caused me to be very unbalanced on my feet. I do have a few minor physical problems now also and require 24 hour ventilation to keep breathing; I am using a pacemaker device for my diaphragm (diaphragmatic pacing) during my hours awake and a ventilator when asleep. I am finally out of hospital and managing well with the help I get. I am Italian...yes even with the red hair! I love music and anything to do with it. I love movies to, my family, my friends and my faith in God is very important to me and is what I believe is getting me through this dreadful journey in life.

Wednesday, August 11, 2010

Hi all, surgery went well! I hope this text comes through, I think I changed the setting. I was overwhelmed, so happy and amazed to recieve so many good wishes. I showed mum and she is to. What a strange but wonderful world we live in! I am alive and moving normal, attached to so many machines though for now. Ive been sleeping so havent seen my surgeon today and mum is busy getting my meds ready with the nurses. I cant wait to give Dr Teo a high five in the morning! I AM ALIVE AND WELL, HEARING SEEMS OK...WILL KNOW MORE IN A FEW DAYS!
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